Sep 12, 2024 Citizens' Advisory Commission on Disabilities

GOOD AFTERNOON.

[00:00:01]

JENNIFER, CAN I PLEASE HAVE THE CALL? TIME, THE TIME IS 1:03 PM CHAIR.

THANK YOU.

THANK YOU.

THANK YOU.

COMMISSIONER, CAN

[ROLL CALL]

UH, MY NAME IS STEVE ADAMS. I'M AFRICAN AMERICAN.

I'M WEARING GLASSES, HAVE SHORT HAIR.

I'M WEARING A BLACK POLO SHIRT, AND I AM HAPPY TO BE WITH YOU.

HI, MY NAME IS CHAKA GARBE, COMMISSIONER CHAKA GARBE SECRETARY, AND I AM CURRENTLY WEARING A, UM, GREEN TOP WITH LIKE WHITE SPECKS, BLACK HAIR, AFRICAN-AMERICAN FEMALE.

AND I JUST WANNA SAY WELCOME.

HI, GOOD AFTERNOON.

I'M GRETCHEN SWANSON, COMMISSIONER.

UM, SHE HER PRONOUNS.

I AM AN OLDER WHITE, UH, WOMAN WITH SHORT WHITE HAIR.

I WEAR GLASSES.

AND TODAY I'M WEARING AN OFF-WHITE, UM, BLOUSE AND, UM, A NECKLACE AROUND MY NECK.

HI, COMMISSIONER MARISSA GONZALEZ, WHITE FEMALE, UH, SHOULDER LENGTH BROWN HAIR, WEARING A BRIGHT ORANGE TOP.

AND I USE A WALKING CANE FOR MOBILITY.

HI, I AM COMMISSIONER JULIE DEAN.

I'M A CAUCASIAN WOMAN IN A MOBILITY SCOOTER WITH SHE HER PRONOUNS.

I HAVE SHORT AUBURN HAIR AND BRAND NEW BURGUNDY GLASS, OR NOT BURGUNDY, MAROON, WHATEVER THEY ARE GLASSES.

AND I AM WEARING A BLUE DRESS.

.

HELLO, COMMISSIONER ARTHUR ROMO, MALE HISPANIC, UH, SENIOR MALE, HIM AT THE HISPANIC, GOT A BLUE SHIRT ON, SHORT, DARK HAIR, GRAY TEMPLES, AND A GRAY MUSTACHE.

THANK YOU COMMISSIONERS.

JENNIFER, CAN WE PLEASE READ THE FIRST ITEM? ITEM NUMBER

[1. 24-54809 Recommendation to approve the minutes for the Citizens' Advisory Commission on Disabilities meeting of Thursday, July 11, 2024.       Suggested Action: Approve recommendation. ]

THANK YOU.

CAN I GET A MOTION ON THIS ITEM? MOTION? SECOND.

IT HAS BEEN MOVED BY COMMISSIONER DEAN, AND SECONDED BY COMMISSIONER SWANSON.

THANK YOU.

THANK YOU.

AND BEFORE WE GET, GO INTO THE NEXT ITEM, IS THERE ANY PUBLIC COMMENTS RELATED TO THIS ITEM? IF THERE ARE ANY MEMBERS OF THE PUBLIC THAT WOULD LIKE TO SPEAK ON THIS ITEM IN PERSON, PLEASE LINE UP AT THE PODIUM AND ON THE ZOOM, YOU CAN PLEASE RAISE YOUR HAND, THE FEATURE HAND, OR DIAL STAR NINE IF CALLING IN, SEEING NO PUBLIC COMMENT AT THIS TIME.

CHAIR.

THANK YOU, COMMISSIONERS.

IS THERE ANY DISCUSSION ON THIS ITEM? OKAY, JENNIFER, CAN YOU PLEASE CALL FOR A VOTE? COMMISSIONER ROMO.

AYE.

CHAIR ADAMS AYE.

SECRETARY GARBE AYE.

COMMISSIONER SWANSON.

AYE.

COMMISSIONER GONZALEZ? AYE.

COMMISSIONER DEAN.

AYE.

MOTION PASSES.

MOVING ON TO ITEM NUMBER TWO, RECOMMENDATION

[2. 24-54810 Recommendation to receive and file a report from Asian & Pacific Islanders with Disabilities California on the All of Us Research Program.       Suggested Action: Approve recommendation. ]

THANK YOU.

CAN I GET A MOTION ON THIS ITEM? I SO MOVE I SECOND.

IT HAS BEEN MOVED BY COMMISSIONER SWANSON AND SECONDED BY SECRETARY GARBE, UH, A-P-I-B-C.

THE FLOOR IS YOURS.

THANK YOU COMMISSIONERS.

AND JENNIFER, THANK YOU FOR INVITING US TO SPEAK TODAY.

MY NAME IS JONNA CHO.

I'M VICE CHAIR OF ASIANS AND PACIFIC ISLANDERS WITH DISABILITIES OF CALIFORNIA.

I'M AN ASIAN AMERICAN WOMAN WEARING A WHITE SHIRT AND A GRAY JACKET TODAY.

SO I'M HERE TO TALK ABOUT A LITTLE BIT ABOUT, TELL YOU A LITTLE BIT ABOUT A-P-I-D-C AND ALSO ABOUT THE ALL OF US RESEARCH PROGRAM THAT WE'RE DOING, UM, OUTREACH TO THE COMMUNITY FOR.

SO A-P-I-D-C WAS THE FIRST, AND WE ARE THE LONGEST STANDING NONPROFIT ORGANIZATION.

YOU CAN GO TO THE NEXT SLIDE.

JENNIFER, DEDICATED TO ADDRESSING AND ADVOCATING FOR ASIANS AND PACIFIC ISLANDERS AND, UM, WITH DISABILITIES AND ASIANS AND PACIFIC ISLANDERS, NATIVE HAWAIIANS AND PACIFIC ISLANDERS.

I'LL USE INTERCHANGEABLY.

TODAY, OUR MISSION IS TO GIVE A VOICE AND A FACE TO ASIANS AND PACIFIC ISLANDERS WITH DISABILITIES.

PHYSICAL, MENTAL, DEVELOPMENTAL

[00:05:01]

SO AS A COMMUNITY, WE RECOGNIZE THAT THEIR CULTURAL AND SOCIAL STIGMA OFTEN, UM, CREATES CHALLENGING, CHALLENGING BARRIERS, UM, TO TALKING ABOUT DISABILITIES AND SEEKING, HELP THEIR CULTURAL BELIEFS IN THE ASIAN AMERICAN AND PACIFIC ISLANDER COMMUNITY AROUND DISABILITIES.

FOR EXAMPLE, A BELIEF THAT MAYBE A DISABLED CHILD MAY BE BAD KARMA FROM A BAD LIFE.

UM, OR SO IT'S SHAMEFUL FOR THE FAMILY.

UM, MISCONCEPTIONS ABOUT PEOPLE WITH HIDDEN OR IN INVISIBLE, INVISIBLE DISABILITIES.

AND ALSO THE MODEL MINORITY MYTH THAT HIDES DISABILITIES IN THE COMMUNITY AND MAKES IT SEEM LIKE DISABILITIES DOESN'T AFFECT ASIAN AMERICANS AND PACIFIC ISLANDERS.

AND THERE ARE LANGUAGE BARRIERS, RIGHT? SO MANY OF OUR MANY IN OUR POPULATION DON'T SPEAK ENGLISH.

THEY'RE NOT NATIVE ENGLISH SPEAKERS.

THAT PROVIDES ANOTHER, UM, BARRIER TO SERVICES AND ALSO SOCIO AND ECONOMIC BARRIERS.

AND WITH THE MODEL MINORITY MYTH, SOMETIMES IT'S, IT'S NOT HIDDEN THAT, THAT THERE'S A LARGE PART OF OUR POPULATION THAT IS, UM, AFFECTED BY SOCIOECONOMIC BARRIERS.

SO THESE ARE ALL THE TYPES OF ISSUES THAT WE FACE IN OUR COMMUNITY, AND WE, OUR PROGRAMS ARE GEARED TOWARD BREAKING DOWN SOME OF THESE BARRIERS WITH A FOCUS TOWARD FOSTERING AND ENCOURAGING THE NEXT GENERATION OF LEADERS.

SO OUR ORGANIZATION HAS HELD SIX MAJOR STATEWIDE DISABILITY CONFERENCES THAT BROUGHT TOGETHER FAMILIES AND, UM, SERVICE PROVIDERS AND ELECTED OFFICIALS AND PEOPLE WITH DISABILITIES TO TALK ABOUT ALL OF THESE ISSUES AND TO BRING IT OUT INTO THE OPEN AND TO CREATE THIS SPACE FOR PE FOR FOR THEM TO DISCUSS OPENLY AND TO FIND OUT MORE ABOUT WHAT SERVICES ARE AVAILABLE TO THEM, UM, OFTENTIMES IN OUR COMMUNITY, UM, BECAUSE PEOPLE DON'T KNOW THAT THEIR SERVICE IS OUT THERE, THEY KEEP THEIR FAMILY MEMBERS HOME, AND THEN WHEN THE PARENTS PASS AWAY, THERE'S NO, ALL OF THAT GROUNDWORK HASN'T BEEN LAID FOR THAT INDIVIDUAL.

SO WE ARE TRYING TO BRING THAT OUT INTO THE OPEN AND, AND ENCOURAGE FAMILIES TO FIND AND USE THESE SERVICES THAT ARE AVAILABLE TO THEM.

OUR OTHER PROGRAM IS OUR YOUTH LEADERSHIP INSTITUTE.

AND SO THIS HAS COME OUT OF OUR CONFERENCES WHERE WE FOUND THAT THERE ARE MANY YOUTH WITH DISABILITIES THAT REALLY WANTED TO PARTICIPATE AND TO ADVOCATE FOR THEMSELVES AND FOR THEIR, THEIR COMMUNITY.

SO WE DECIDED THAT WE WOULD DO A YOUTH LEADERSHIP INSTITUTE FOR COLLEGE LEVEL STUDENTS.

MANY OF THEM HAD ATTENDED YOUTH LEADERSHIP FORUM AND THOUGHT THAT WAS LIFE CHANGING FOR THEM.

SO FOR THOSE PEOPLE THAT COULD NOT ATTEND YOUTH LEADERSHIP FORUM, WE CREATED THIS YOUTH LEADERSHIP INSTITUTE FOR COLLEGE AGE STUDENTS.

SO WE, WE, WE CONVENE FOR THREE TO FOUR SUNDAYS, UM, AND WE GIVE GRASSROOTS LEADERSHIP SKILL TRAINING, UM, SUCH AS, UH, PUBLIC SPEAKING, UM, DOING AN ELEVATOR SPEECH, SO PITCHING, UM, ADVOCATING FOR THEMSELVES, ADVOCATING FOR AN ISSUE.

UM, WE DO RESUME WORKSHOPS, INTERVIEW WORKSHOPS, MEDIATION TECHNIQUES, PROBLEM SOLVING.

UM, WE HAVE PEOPLE FROM THE COMMUNITY COME OUT AND TALK TO THEM ABOUT THEIR CAREER PATH AND PROVIDE SUPPORT FOR THEM.

AND WE ALSO DO A, A SEGMENT ON CARE AND STRESS MANAGEMENT.

SO THIS YOUTH LEADERSHIP INSTITUTE WAS STARTED IN 2014, AND TO DATE, WE HAVE ABOUT 50 GRADUATES, ALUMNI OF THE PROGRAM AND MANY OF WHOM HAVE GONE ON TO ADVOCATE FOR DISABILITIES.

UM, AND SOME OF THEM HAVE, HAVE GONE ON OTHER OCCUPATIONS, BUT THEY COME BACK, UM, AND HELP OUT WITH OUR YOUTH LEADERSHIP INSTITUTE.

SOME OF THEM ARE EVEN WORKING WITH US AT A-P-I-D-C ON THE ALL OF US RESEARCH PROGRAM, WHICH I'LL TALK ABOUT NEXT.

AND I WILL SAY THAT IN 2020 WE DID PIVOT BECAUSE WE USED TO HAVE IN-PERSON YOUTH LEADERSHIP INSTITUTE, BUT BECAUSE OF THE PANDEMIC, WE PIVOTED TO ZOOM, AND NOW WE WERE ABLE TO EXPAND OUR REACH TO OUTSIDE OF CALIFORNIA, UM, AND ALSO TO NORTHERN CALIFORNIA.

AND ALSO FOR PEOPLE WHO REALLY MAYBE DIDN'T HAVE MOBILITY ISSUES TO COME IN PERSON.

SO, SO, UH, ZOOM HAS BEEN A BOOM FOR US, REALLY.

SO I'D LIKE TO TALK ABOUT THE ALL OF US RESEARCH PROGRAM, WHICH IS WHAT I'M HERE TO TALK ABOUT TODAY.

AND A-P-I-D-C WAS SELECTED

[00:10:01]

SO WE WORK WITH THE ASIAN HEALTH COALITION IN CHICAGO, AND WE ARE PART OF THE A-A-N-H-P-I RECRUITMENT CORPS.

AND THE ALL OF US RESEARCH PROGRAM IS A GROUNDBREAKING, A GROUNDBREAKING LONG TERM EFFORT TO GATHER DATA FROM 1 MILLION OR MORE PEOPLE ACROSS THE UNITED STATES TO ACCELERATE RESEARCH AND TO IMPROVE HEALTH OUTCOMES FOR PEOPLE.

SO BY TAKING INTO ACCOUNT ALL THE INDIVIDUAL DIFFERENCES IN LIFESTYLE, SOCIOECONOMIC, UM, ENVIRONMENTAL AND BIOLOGY RESEARCHERS ARE ABLE TO GO IN AND TRY TO FIND NEW PATTERNS, NEW CONNECTIONS WITH ALL OF THESE, THIS DATA SO THAT WE CAN COME UP WITH TREATMENTS THAT ARE CUSTOMIZED TO THE INDIVIDUAL AS OPPOSED TO A ONE SIZE FITS ALL APPROACH.

SO HISTORICALLY, A LOT OF BIOMEDICAL RESEARCH HAS BEEN DONE MAINLY ON, ON WHITE MEN.

BUT, SO NO, NOW THIS DATA DATABASE, WE'RE TRYING TO REACH OUT AND MAKE THE MY MOST DIVERSE DATABASE THAT HAS EVER BEEN CREATED IN THE US.

SO THIS IS A PROGRAM THAT'S SPONSORED BY THE NATIONAL INSTITUTES OF HEALTH, AND IT WAS A, A PROGRAM THAT WAS LAUNCHED BACK IN 2015, REALLY A AN EFFORT BY THE OBAMA ADMINISTRATION.

AND THIS IS PART OF A MOVEMENT CALLED PRECISION MEDICINE, WHERE THEY, IT'S A DIFFERENT APPROACH TO TRY TO LOOK AT ALL THESE DIFFERENT ENVIRONMENTAL, UM, SOCIOECONOMIC AND GENETIC DATA TO REALLY COME UP WITH A BETTER, UM, APPROACH TO MEDICINE AND WELLBEING.

SO THIS REALLY A A REVOLUTIONARY APPROACH.

YOU CAN, UM, GO TO THE NEXT SLIDE.

SO THIS IS PRECISION MEDICINE, SO LOOKING AT LIFESTYLE BIOLOGY ENVIRONMENT, AND WE CAN GO TO THE NEXT SLIDE.

AND SO WHAT'S INNOVATIVE ABOUT THE ALL OF US RESEARCH PROGRAM IS THE DIVERSITY AND AT THE SCALE OF A MILLION PEOPLE.

SO DEMOGRAPHICALLY, WE'RE TRYING TO GET FROM ALL DIFFERENT POPULATIONS GEOGRAPHICALLY FROM ACROSS THE UNITED STATES, MEDICALLY, ALL DIFFERENT CONDITIONS.

WE WANT ALL DIFFERENT CONDITIONS TO BE REPRESENTED, NOT JUST HEALTHY PEOPLE, AND ESPECIALLY THOSE THAT HAVE BEEN HISTORICALLY UNDERREPRESENTED IN BIOMEDICAL RESEARCH.

SO THAT IS WHY, UM, THERE'S A RECRUITMENT CORE FOR ASIANS AND NATIVE HAWAIIANS AND PACIFIC ISLANDERS BECAUSE WE HAVE VERY, VERY SMALL PERCENTAGE OF PARTICIPATION IN BIOMEDICAL RESEARCH.

AND THAT HAS REAL WORLD CONSEQUENCES BECAUSE GENETICALLY WE'RE ALL NOT MADE UP THE SAME.

AND THERE, THERE'S A, A MEDICINE ON THE MARKET CALLED PLAVIX THAT IS A HEART RELATED MEDICINE.

AND THEY FOUND ACTUALLY THAT ABOUT 70% OF PACIFIC ISLANDERS, ROUGHLY ABOUT 80% OF ASIANS DON'T HAVE THE ENZYME THAT CAN PROCESS THAT, THAT MEDICATION.

AND SO ALL OF THESE ASIANS AND PACIFIC ISLANDERS THAT WERE BEING PRESCRIBED THIS MEDICATION, IT WAS NOT EFFECTIVE FOR THEM.

AND THEY HEAVILY MARKETED IT IN HAWAII, WHICH HAS A MAJORITY AA AND HPI POPULATION.

SO THAT HAS, HAS REALLY LED TO, UM, SOME REAL CONSEQUENCES FOR PEOPLE.

THE OTHER THING IS THE DIVERSITY OF DATA THAT'S BEING COLLECTED.

UM, SO IT'S CLINICAL, SO IT'S GONNA REQUIRE SOME, SOME BIOLOGICAL DATA.

UM, ENVIRONMENTAL, GENETIC, BEHAVIORAL SOCIOECONOMICS.

SO THERE'S GONNA BE LOTS OF SURVEYS THAT PEOPLE WHO PARTICIPATE IN THIS PROGRAM FILL OUT.

IT'S A FOCUS ON PARTICIPANTS AS PARTNERS.

SO THERE'S, THERE'S A LOT OF INTERACTION WITH THE PROGRAM, A CONSTANT, UM, FEEDBACK THAT, THAT PARTICIPANTS ARE FREE TO, TO GIVE.

UM, AND IT'S A LONG TERM 10 YEAR STUDY.

SO WE'RE PROBABLY ABOUT FOUR OR FIVE YEARS INTO, PROBABLY FIVE YEARS INTO THE PROGRAM RIGHT NOW.

AND THE DATABASE WILL BE NATIONAL AND AN OPEN RESOURCE FOR ALL.

SO RESEARCHERS CAN GET CERTIFIED, THEY CAN GO INTO THE, THE DATABASE, AND THEY CAN START LOOKING AT ALL THIS DATA AND TRYING TO CONNECT THE DOTS.

NEXT.

SO HOW WILL ALL OF US LEAD TO DISCOVERIES? SO FIRST, PARTICIPANTS SHARE THEIR DATA.

SO REQUIRES SOME ONLINE RESEARCH ON ONLINE SURVEYS AND, AND IF THEY, SO CONSENT, UM, ACCESS TO ELECTRONIC HEALTH RECORDS.

AND THEN PARTICIPANTS MAY ALSO BE ASKED TO SHARE PHYSICAL MEASUREMENTS, BLOOD, URINE,

[00:15:01]

UM, THEY SEPARATE YOUR PERSONAL INFORMATION FROM YOUR DATA, YOUR HEALTH DATA, AND THEN THE SAMPLES ARE HELD IN, IN SECURED BIOBANKS.

THEN THE RESEARCHERS GO IN AND THEY START TO STUDY THE DATA.

AND IF YOU GO ONTO THE WEBSITE, THE ALL OF US.ORG WEBSITE, YOU CAN SEE THERE'S ALREADY BEEN SOME RESEARCH BEING DONE AND YOU CAN SEE SNAPSHOTS OF WHAT THE DATABASE CURRENTLY LOOKS LIKE.

AND ADDITIONALLY, PARTICIPANTS WILL GET INFORMATION ABOUT THEIR HEALTH.

SO, SO FAR, I SIGNED UP LAST YEAR AND I GOT INFORMATION ABOUT, YOU KNOW, SORT OF FUN THINGS LIKE, AM I MORE LIKELY THAN NOT TO LIKE CILANTRO OR, YOU KNOW, MY LACTOSE INTOLERANT? AND IT'S FUNNY BECAUSE SOMETIMES IT SAYS THAT YOU'RE, YOU, YOU MAY BE GENETICALLY INCLINED FOR THAT, BUT I LOVE CILANTRO.

IT SAYS I WOULDN'T LIKE IT, BUT I'D REALLY LOVE IT.

SO, SO IT'S JUST INTERESTING TO SEE WHAT, SO WHAT YOUR, YOUR DNA ACTUALLY, UM, SAYS.

AND THEN RESEARCHERS WILL GO IN AND THEN THEY SHARE THE DISCOVERIES AND IT MAY LEAD TO FURTHER RESEARCH.

OKAY, NEXT SLIDE.

AND SO WHAT IS THE PROMISE FOR PARTICIPANTS? IT'S AN OPPORTUNITY TO HELP SITE DISEASE AND HELP THE HELP OF FUTURES, GENERATIONS, OUR KIDS, OUR GRANDKIDS.

WITH ALL THIS ADDITIONAL DATA, IT'S A CHANCE TO LEARN ABOUT YOUR OWN HEALTH.

IT'S THE OTHER INFORMATION THAT, UM, YOU GET IS IT WILL TELL YOU WHAT MEDICINES THAT YOU MIGHT BE MORE THAT MIGHT BE MORE OR LESS EFFECTIVE FOR YOU, AND WHAT DISEASES OR CONDITIONS THAT YOU MIGHT BE MORE GENETICALLY INCLINED FOR.

SO THIS IS INFORMATION THAT YOU CAN TAKE AND GO TALK TO YOUR DOCTOR ABOUT, UM, THE ABILITY TO ACCESS YOUR OWN DATA.

YOU, THERE'S A PORTAL THAT HAS ALL OF YOUR, YOUR SURVEY RESULTS AND YOUR GENETIC RESULTS.

AND AT ANY TIME YOU CAN, YOU CHOOSE NOT TO PARTICIPATE FURTHER, AND YOU CAN ALSO CHOOSE NOT TO SEE YOUR GENETIC, UM, INFORMATION.

UM, SO IT'S EVERY STEP OF THE WAY.

UM, THERE'S A CONSENT AND THEN THERE'S A CHANCE TO LEARN ABOUT ADDITIONAL RESEARCH.

LIKE I SAID, IF YOU GO ONTO THE WEBSITE, YOU CAN SEE LIKE ALL THE RESEARCH THAT IS BEING DONE.

NEXT SLIDE.

AND SO THESE ARE THE THINGS THAT WOULD BE ASKED OF THE PARTICIPANTS.

SO THE FIRST STEP WOULD BE TO ENROLL AND TO GO ONLINE.

UM, THEY'RE RECRUITING ADULTS AND I THINK NOW THEY'VE OPENED IT UP TO CHILDREN ABOVE FOUR.

UM, IT'S ALL, ALL ONLINE.

AND THEN, UM, THERE'S SIX SURVEYS, INITIAL SURVEYS THAT YOU WOULD FILL OUT AND ADDITIONAL ONES ON AN ONGOING BASIS.

SO I RECENTLY FILLED OUT ONE ON MENTAL HEALTH, SO THAT WILL, THAT WILL BE ADDED TO MY PROFILE.

UM, THEY'LL, UM, TAKE SOME PHYSICAL MEASUREMENTS, UH, BLOOD PRESSURE, HEART RATE HEIGHT, HIP WAIST CIRCUMFERENCE, BMI, UM, AND, UM, IF YOU SO CHOOSE BLOOD, SALIVA, URINE SAMPLES.

AND WE ARE PARTNERED WITH UNIVERSITY OF CALIFORNIA IRVINE, USC AND, UM, CEDAR-SINAI, WHO ARE PARTNERS WHO WILL DO THE COLLECTION OF THIS, THESE SAMPLES.

AND THERE'S ALSO THE OPTION OF WEARING FITBITS AND THEY'LL TRACK YOUR FITBIT INFORMATION.

SO I'D LIKE TO JUST, UM, SHOW SOME TESTIMONIALS.

NOW THIS, THESE WERE PROVIDED BY THE AMERICAN ASSOCIATION ON HEALTH AND DISABILITY.

UM, SO JENNIFER, COULD WE SEE CARL'S STORY, THE TYPES OF MEDICATIONS I CAN HAVE? WE ALL HAVE REASONS TO SHARE OUR HEALTH STORIES.

PART OF MY DISABILITY HAVE A RARE BLOOD CONDITION, WHICH LIMITS THE TYPES OF MEDICATIONS.

I CAN HAVE ABOUT 20 TO 25% OF THE COUNTRY HAS A DISABILITY OF SOME SORT.

IT DOESN'T NECESSARILY MEAN THE SAME THING FOR EVERY PERSON WITHIN THE COMMUNITY.

IF YOU LOOK AT JUST ONE DIAGNOSIS, IT DOESN'T TELL THE WHOLE PICTURE.

YOU REALLY NEED TO LOOK AT HOW THAT IT RELATES TO THAT PARTICULAR INDIVIDUAL AND HOW IT AFFECTS THEIR FUNCTIONALITY AND HOW THEY GO ABOUT THEIR EVERYDAY LIVES.

JOINING THE ALL OF US RESEARCH PROGRAM MEANS CONTRIBUTING TO

[00:20:01]

A MOTTO THAT'S WITHIN THE DISABILITY COMMUNITY IS NOTHING ABOUT US WITHOUT US.

HERE'S A PROGRAM THAT'S SPECIFICALLY LOOKING FOR THE INVOLVEMENT OF THE DISABILITY COMMUNITY.

TAKE PART IN THE LARGEST HEALTH DATABASE OF ITS KIND.

IF THE ACCOMMODATIONS ARE IN PLACE, I DON'T HAVE A DISABILITY, IT REALLY WILL, UH, BENEFIT ALL OF US.

SHARE YOUR HEALTH STORIES TODAY AND HELP GUIDE THE DISCOVERIES OF TOMORROW.

LEARN MORE AT JOIN ALL OF US.ORG.

AND WE HAVE ONE MORE.

I'VE HAD QUESTIONS EVER SINCE.

GROWING UP WITH MY DISABILITY, WHICH IS OSTEOGENESIS IMPERFECTA, I WONDERED ABOUT WHAT MY ADULTHOOD WOULD LOOK LIKE.

UM, MY DISABILITY CAUSES MY BONES TO FRACTURE EASILY.

SO I WONDERED WOULD THAT STILL BE THE SAME IN ADULTHOOD? WOULD MY BONES GET STRONGER? I THINK SOMETIMES IN DISABILITY COMMUNITIES THERE'S KIND OF LIKE RUMORS AND UNFORTUNATELY THAT IS NOT ALWAYS THE MOST ACCURATE WAY TO GET INFORMATION ABOUT YOUR HEALTH.

SO I REALLY WONDERED JUST LIKE I THINK MANY YOUNG PEOPLE DO WHAT MY FUTURE LOOKED LIKE, AM A RESEARCHER MYSELF.

SO I TEND TO GO TO LITERATURE AND LOOK AT, UM, WHAT HAS STUDIES, YOU KNOW, BEEN ABLE TO TELL US ABOUT THE QUESTIONS THAT I HAVE.

BUT SOMETIMES STUDY SAMPLES DON'T INCLUDE PEOPLE LIKE ME OR, OR EVEN PEOPLE LIKE MY CHILDREN.

I UNDERSTAND THE DISTRESS THAT MANY IN THE DISABILITY COMMUNITY FEEL ABOUT RESEARCH IN GENERAL AND THE LARGE SCOPE, BUT THE OPPORTUNITY THAT ALL OF US PRESENTS IS NOT, YOU KNOW, BEING AN OUTSIDER OF RESEARCH, BUT IN THIS CASE, BEING AN ACTIVE PARTICIPANT.

AND ALSO, I THINK, AT LEAST FOR ME, WHEN I LOOK TO SEE IF I CAN TRUST A RESEARCH ENTITY OR RESEARCH PROJECT OR EVEN HEALTHCARE KIND OF AT LARGE, I LOOK TO SEE IF PEOPLE THAT LOOK LIKE ME, UM, AND REPRESENT VALUES OF MINE, WHICH ARE STRONGLY THAT DISABLED LIVES OR WORTHY ARE KIND OF ON THE OTHER SIDE OF THE TABLE.

IT'S BEEN ENCOURAGING TO ME TO KNOW THAT DISABLED PEOPLE ARE A PART OF THE IMPLEMENTATION OF ALL OF US, AND I'M EXCITED ABOUT WHERE IT MAY LEAD.

SO THAT'S, THERE ARE SOME OTHER TESTIMONIALS ON YOUTUBE, UM, THAT YOU COULD WATCH.

UM, BUT THAT'S IT FOR MY, MY PRESENTATION.

THANK YOU, UM, COMMISSIONERS FOR LISTENING.

UM, AND I'LL TAKE ANY QUESTIONS THAT YOU MIGHT HAVE RIGHT NOW.

THANK YOU MS. UH, DONNA SHAW.

APPRECIATE THE PRESENTATION.

WE REALLY, REALLY THINK THIS IS A GREAT, GREAT, UH, NEED.

AND SO WE DEFINITELY WOULD LIKE TO HEAR, UH, ANY, UH, PUBLIC COMMENTS RELATING TO THIS ITEM.

SO, UH, JENNIFER, CAN I GO AHEAD AND ASK FOR THE MEMBERS FROM THE PUBLIC, IF THERE'S ANY MEMBERS IN PUBLIC THAT WOULD LIKE TO SPEAK ON THIS ITEM AND IN PERSON, PLEASE LINE UP THE PODIUM AND IN THE ZOOM PLEASE USE THE RAISE HAND FEATURE OR DOW STAR NINE IF CALLING IN, WE HAVE A SPEAKER THAT WOULD LIKE TO COME SPEAK.

THANK YOU.

UM, UH, CHAIR ADAMS AND, UH, COMMISSIONERS, UM, UH, MS. FRANCIS HAS REQUESTED MORE TIME TO SPEAK.

UM, CAN WE GRANT HER THE, THE FIVE MINUTE, UM, TIME? YES.

THANK YOU.

WOULD YOU LIKE ME TO BRING THE PODIUM DOWN? OH, UH, YES.

YES.

ALYSSA'S GONNA HELP.

THANK YOU SO MUCH.

OH, I THOUGHT I MIGHT BE ABLE TO SPEAK ON HER PRESENTATION.

YES, YOU WILL.

WE'RE GONNA PUT THE PODIUM DOWN REALLY QUICKLY.

AND THEN DO YOU NEED FIVE MINUTES TO SPEAK? I ABLE TO SPEAK ON THIS ITEM? YES.

FANTASTIC.

UM, I'M SO EXCITED.

OKAY.

OKAY.

I AM FRANCIS, EMILY DAWSON, HARRISON, I HAVE ON A FUSIA HAT AND I BL ADDRESS THIS BEIGE WITH BLACK DESIGN IN IT.

UM, WHAT A AWESOME PROGRAM THAT YOU HAVE.

I'M JUST ELATED.

UM, MY BACKGROUND IS PEDIATRIC NURSING, AND SO WHEN I WAS LISTENING TO EVERYTHING, IT WAS QUITE A BIT OF, UM, FANTASTIC INFORMATION.

YOU MADE A COMMENT ABOUT, UM, YOU CAN SIGN UP FOR THE PROGRAM, LIKE IF YOU'RE FOUR YEARS OR OLDER.

I HAVE A CONCERN NOT ABOUT SIGNING UP FOUR YEARS OR OLDER, BUT A CONCERN ABOUT THE BABIES BORN UP TO THE AGE OF FOUR AND NOT HAVING PARTICIPATION IN THE PROGRAM.

SO I WAS THINKING THAT THERE'S A POSSIBILITY LOOKING AT THE PARENTS AND SEEING WHAT THEIR HEALTH CONCERNS ARE, IF THEY HAVE ANY TYPE OF, UM, GENETIC KIND OF DISORDER OR TESTING

[00:25:01]

UM, AND IF YOU FIND SOMETHING SIGNIFICANT THAT THEY HAVE THE POTENTIAL, LOOKING INTO TRYING TO FIND A WAY, UM, ON HOW THEIR CHILDREN ARE DOING BEFORE THEY'RE FOUR YEARS OF AGE.

UM, CHILDREN ARE EXPOSED TO SO MANY THINGS, EVEN IN UTERO AND WITH ALL THE THINGS THAT ARE IN THE AIR AND EVERYTHING, AND DIET.

AND SO I WANT TO MENTION ABOUT, UM, DIET.

UM, I'M ON A DIET ACCORDING TO THE BLOOD TYPE AND ACCORDING TO YOUR BLOOD TYPE, THERE'S A BOOK CALLED EAT RIGHT ACCORDING TO YOUR TYPE.

AND IT'S VERY, VERY, VERY BENEFICIAL.

AND I KNOW A LOT OF PEOPLE THAT ARE ON, IT'S LIKE SCIENTIFICALLY LOOKED INTO AND I DIDN'T, I DIDN'T SEE ANYTHING SPECIFIC ABOUT, YOU KNOW, SPECIFIC NUTRITION THAT I THINK WOULD BE ABSOLUTELY PHENOMENAL.

AND THEN, UM, UM, THERE WAS ANOTHER THING THAT MY BRAIN JUST WENT ON.

PAUSE, .

OKAY.

UM, LET'S SEE IF I CAN FIGURE IT OUT.

OKAY.

THE, THE BLOOD TYPE.

OH, UM, PEOPLE DO NOT KNOW THE BLOOD TYPE.

I'M LIKE IN SHOCK WHEN I'M OUT AND ABOUT AND ASKING PEOPLE, DO YOU KNOW YOUR BLOOD TYPE? NO, I DON'T KNOW MY BLOOD TYPE.

YOU NEED TO FIND OUT WHAT YOUR BLOOD TYPE IS BECAUSE YOU NEVER KNOW IF THERE'S GONNA BE AN EMERGENCY, IF THERE'S AN EARTHQUAKE OR ANYTHING OF THE SORT.

IT CAN BE A MATTER OF SAVING YOUR LIFE.

AND IF YOU DO, ARE ABLE TO GET THE BLOOD TYPE ON THE PERSONS THAT ARE INVOLVED.

THEN WITH THE, THE BLOOD TYPE, IT'LL BE EXACTLY THE SAME WITH THE PARENTS.

AND EVEN THE CHILDREN NOT FOUR YEARS OF AGE CAN PARTICIPATE.

THEN YOU CAN LOOK AT THE BLOOD, BLOOD TYPE THAT THE PARENTS HAVE, LOOK AT THE CONDITIONS THEY HAVE, AND YOU FIND OUT THAT THERE'S POTENTIAL OF THEM HAVING SOME VERY SERIOUS TYPE OF DISEASE THAT CAN BE DISCOVERED DURING CHILDHOOD BEFORE THE SYMPTOMOLOGY STARTS.

I THINK IT'D BE REALLY AWESOME, YOU KNOW, TO DO THAT.

THANK YOU FOR THE OPPORTUNITY TO SPEAK.

THANK YOU.

SEEING NO MORE PUBLIC COMMENT.

COMMISSIONER, IS THERE ANY DISCUSSION ON THE SIDE? YES, COMMISSIONER SWANSON.

UH, THANK YOU.

I DON'T KNOW WHERE TO START.

UH, THIS IS SO TIMELY.

WELL, IT'D BEEN GREAT IF IT WAS DONE YEARS AGO, RIGHT? SO, UH, BUT THAT'S NOT OUR WAY HERE.

UM, SO ONE, I REALLY APPRECIATE YOUR COMING HERE AND SHARING THIS WITH US.

IT'S VERY OPPORTUNE FOR US.

I HOPE, UM, THAT JENNIFER HAS YOUR CONTACT INFORMATION.

UM, ONE THING, AND IT'S VERY COMPREHENSIVE AND IT TAKES YEARS TO, YOU KNOW, UH, LIVE THROUGH ALL OF THIS DATA GATHERING AND WHATNOT, WHICH HAS TO BE DONE.

UM, AS A RETIRED HEALTHCARE PRACTITIONER, I WA I LIVED FOR 50 YEARS IN THE STEW CALLED HEALTHCARE HERE IN THE UNITED STATES, WHICH IS, UM, PROFOUNDLY IMPAIRED IN TERMS OF CULTURE, CULTURAL DISTINCTIONS AND CULTURAL BACKGROUND AND CULTURAL PRESUMPTIONS.

AND I AM HOPING, AND THAT'S FROM OUR SIDE, , THAT'S FROM THE PRACTITIONER SIDE, UM, THAT, UH, THIS CAN HELP.

UM, AND I KNOW IT'S ON A CASE BY CASE BASIS, BUT THERE NEEDS TO BE ON BEHALF OF PHYSICIANS, NURSES, THERAPISTS, AND THE LIKE, UM, GREATER UNDERSTANDING AND OF, AND OF APPROACHES OF WHAT HEALTH CARE MEANS, OF WHAT THERAPIES MEAN, WHAT MEDICATIONS MEAN, AND THE EXPECTATIONS.

UM, WE TEND TO, UM, MAKE GRAND ASSUMPTIONS AND PUT EVERYBODY IN THE BOX, RIGHT, BASED ON A WHITE MALE COLLEGE AGE, YOU KNOW, SUBJECT MATTER.

AND WE DON'T HAVE SCIENCE BASED ON DIFFERENT, UH, COMMUNITIES OF PEOPLE.

SO I WISH ALL OF THIS WELL.

UM, WE ARE ENTERING INTO A DATA GATHERING PROCESS HERE, UM, IN LONG BEACH.

UM, AND I, I LOOK TO YOUR, YOUR STRATEGIES.

UM, I I'M GONNA LEAVE WITH A QUESTION FOR YOU, WHICH IS, WAS THERE SOMETHING YOU HOPED FROM US THAT WE COULD DO ON YOUR BEHALF TO SUPPORT THIS MAGNIFICENT EFFORT? I THINK I CAN, I CAN STILL TALK.

I'M SURE ENOUGH.

UM, YEAH, I, I THINK I WANTED YOU ALL

[00:30:01]

IF THERE'S ANY, UM, ANYONE.

I MEAN, THE GREAT THING ABOUT LONG BEACH, IT'S SO DIVERSE.

THERE ARE SO MANY DIFFERENT POPULATIONS TO CHOOSE FROM, UM, WHO ARE POTENTIAL, UM, PARTICIPANTS IN THIS PROGRAM.

IF THERE ARE ANY OTHER ORGANIZATIONS THAT WE COULD SPEAK TO, UM, YOU KNOW, THAT'D BE AWESOME.

I'M GONNA LEAVE YOU GUYS WITH SOME, UM, INFORMATION ABOUT THE PROGRAM, ABOUT HOW TO SIGN UP.

AND, UM, WE HOPE TO HAVE MORE EVENTS THROUGHOUT THE YEAR WHERE WE ALSO HAVE PARTNERS IN ORANGE COUNTY AS WELL AS IN LA AND TRYING TO DO MORE EVENTS THIS YEAR TO TRY TO ENROLL MORE PEOPLE.

SO, YEAH, NO, JUST, JUST, UM, THANK YOU FOR HAVING ME TODAY AND IF YOU HAVE ANY FURTHER SPEAKING OPPORTUNITIES, WE'D BE HAPPY TO, TO DO THAT.

THANK YOU SO MUCH.

AND I'M VERY INTERESTED IN YOUR YOUTH LEADERSHIP INSTITUTE.

UM, SO IF THERE'S ANY WAY, ANY INFORMATION YOU CAN SHARE WITH JENNIFER TO SHARE WITH US, WE WOULD LOVE TO COME OUT TO ONE OF YOUR CEREMONIES OR BE A PART OF IT TO BE INVITED.

SO IT'D BE GREAT TO GET MORE INFORMATION.

THANK YOU SO MUCH.

YEAH, WE WOULD REALLY APPRECIATE THAT.

YES.

ANY OTHER COMMISSIONERS? ANY QUESTIONS, CONCERNS, SUGGESTIONS? OKAY.

THANK YOU SO MUCH MS. SHOW.

OKAY, JENNIFER, CAN WE PLEASE GET A VOTE? YES.

UH, COMMISSIONER ROMO.

AYE.

CHAIR ADAMS AYE.

SECRETARY GARIT AYE.

COMMISSIONER SWANSON.

AYE.

COMMISSIONER GONZALEZ.

AYE.

COMMISSIONER DEAN.

AYE.

MOTION PASSES.

MOVING ON TO THE NEXT ITEM.

RECOMMENDATIONS TO RECEIVE

[3. 24-54811 Recommendation to receive and file reports from current Ad Hoc Committees, including the Disability Data and Community Survey Ad Hoc Committee, Air Travelers with Disabilities Panel Discussion 2024 Ad Hoc Committee, Mentor Day 2024 Ad Hoc Committee, LB Homeless Shelter Tours 2024 Ad Hoc Committee, Disability Disclosure Social Media Campaign for Youth 2024 Ad Hoc Committee, and Access Mapping Ad Hoc Committee.       Suggested Action: Approve recommendation. ]

GREAT.

THANK YOU, JENNIFER.

AGAIN, I GET EMOTIONAL ON THIS ITEM.

MOTION.

SECOND.

SECOND.

IT WAS MOVED BY COMMISSIONER DEAN AND SECONDED BY COMMISSIONER SWANSON.

THANK YOU, JENNIFER.

THE FLOOR IS YOURS.

YES.

I'M JUST GONNA START TO GIVE THE REPORTS, UM, OF, OF COMMISSIONERS THAT ARE ABSENT TODAY.

SO THE, UH, THE DISABILITY MENTOR DAY, UM, HAS BEEN, UM, UM, PUBLICIZED TO CITY STAFF TO GARNER, UM, VOLUNTEERS TO BE MENTORS TO COLLEGE STUDENTS.

AND THE APPLICATION HAS ALSO GONE OUT TO COLLEGE STUDENTS LOCALLY.

UM, THIS HAS ALSO BEEN POSTED, POSTED TO THE OFFICE OF EQUITY SOCIAL MEDIA, AND THERE ARE, UM, ALSO, UM, UH, REQUESTS FOR IT TO GO OUT, UM, FROM OTHER CU UH, COMMUNITY BASED ORGANIZATIONS FOR PARTICIPATION.

UM, THAT CONCLUDES THE REPORT FOR, UM, THE DISABILITY MENTOR DAY.

UM, MOVING ON TO, UM, THE DISABILITY DISCLOSURE SOCIAL MEDIA CAMPAIGN FOR YOUTH 2024 AD HOC COMMITTEE.

UH, THE MEMO HAS BEEN DRAFTED AND SENT TO THE CITY MANAGER, AND IT IS IN, UM, UH, IN THE PATHWAY TO BE APPROVED.

UM, THAT CONCLUDES MY REPORT FOR, UH, THAT COMMITTEE.

UM, MOVING ON TO THE DISABILITY DATA AND COMMUNITY SURVEY AD HOC COMMUNITY COMMITTEE, UH, I GIVE THE FLOOR TO COMMISSIONER SWANSON.

UH, THANK YOU JENNIFER.

UH, YES.

UH, THIS, UH, AD HOC COMMITTEE HAS BEEN PRETTY BUSY SINCE WE MET LAST.

UM, WE MET ON SEPTEMBER, UH, FOURTH, BUT, UH, FROM THE LAST TIME WE'VE MET UNTIL JUST TWO DAYS AGO, WE HAVE HAD, UM, VISITS WITH ZOOM, VISITS WITH THREE OF OUR CITY COUNCIL MEMBERS, UH, COUNCIL MEMBERS IN DEJAS, UH, THE STAFF OF DR.

RICK OTI, UH, OFFICE, AS WELL AS MEETING WITH, UH, COUNCIL MEMBER MEGAN KERR, UM, ON THREE SUCCESSIVE DATES.

UM, AND WHAT WE DID DURING THOSE MEETINGS WAS TO PRESENT THE, UH, PURPOSE OF THIS AD HOC, UM, UH, COMMITTEE AND WHAT THE, UH, GOAL WOULD BE.

AND JOINING US WERE TWO FOLKS FROM CAL STATE LONG BEACH, DR.

GARY HETRICK, AND, UH, WESLEY ROGERS, WHO WILL BE PARTICIPATING WITH US IN DATA GATHERING.

UM, AND, UH, WE SPENT TIME, UH, DESCRIBING THE QUALITY OF, UH, GATHERING DATA ACROSS ALL OUR DISABILITY COMMUNITIES HERE IN THE CITY.

UM, THE STRATEGIES TO GATHER THAT DATA, AND WE WERE REQUESTING

[00:35:01]

BUT THE POINT OF, OF ALL OF THE DATA GATHERING WAS TO CREATE A REPORT ON THE STATE OF DISABILITY IN LONG BEACH, WHICH WILL BE THE CULMINATION OF THE DATA GATHERING.

WHAT'S REALLY EXCITING IS YESTERDAY WE LEARNED, UH, THROUGH JENNIFER THAT WE HAVE HAD THIS, UM, EFFORT FUNDED THROUGH, UH, THIS YEAR'S BUDGET, UH, PROCESS.

SO WE'RE VERY EXCITED.

IT'S FULLY FUNDED FOR THE TWO YEARS SO THAT WE CAN HAVE THE, UM, INDIVIDUALS FROM CAL STATE LONG BEACH, UM, ASSIST US WITH THIS, UH, FIRST TIME EFFORT.

AND IT WILL IMPACT THE COMMUNITIES HERE IN LONG BEACH.

BUT SPECIFICALLY, IT WILL BE DIRECTED TO, UH, SERVICE DEPARTMENTS HERE WITHIN THE CITY SO THEY CAN LOOK AT WHAT, UH, GAPS THERE ARE OR WHAT IS NEEDED FOR A VARIETY OF DISABILITY COMMUNITIES HERE FOR THE CITY OF LONG BEACH.

AND THAT'S A WRAP JUST TO ADD ON COMMISSIONER SWANSON'S REPORT.

YES, THE CITIZEN'S ADVISORY COMMISSION ON DISABILITY DID RECEIVE A ONE TIME ALLOCATION IN THE FY 25 BUDGET FOR $60,000.

UM, SO THAT'S REALLY EXCITING.

UM, WE'LL HAVE THIS, THESE FUNDS AND WE'LL BE ABLE TO CONDUCT THIS RESEARCH OVER A TWO YEAR PERIOD.

THANK YOU.

GREAT.

THANK YOU.

JENNIFER, IF I COULD JUST ADD TO THAT, IT'D BE NICE IF WE CAN, UM, HAVE SOME TYPE OF PR ON THAT AND GET THE WORD OUT ONCE WE GET THE BALL MOVING, UH, ONCE WE GET THE BALL MOVING.

YES.

UM, UH, THERE WILL BE, UM, THE, THE COMMUNITY WILL BE NOTIFIED, UM, AND THERE ARE FUNDS, UM, TO GARNER, UM, PARTICIPATION FROM THE COMMUNITY, UM, IN THE FORM OF FOCUS GROUPS AND EVENTS TO PROMOTE, UM, TAKING THE SURVEY AS WELL, SIMILAR TO WHAT, UM, MS. CHO HAD JUST, UM, EXPLAINED IN, IN, IN THEIR PROCESS OF GATHERING, UM, THE DATA.

AWESOME.

UM, THANK YOU COMMISSIONER SWANSON.

UM, MOVING ON, UM, TO THE AIR TRAVELERS, UH, WITH DISABILITIES PANEL DISCUSSION.

UM, THE, UH, THE EVENT IS A TWO DAY ONLINE FORUM FOR AIR TRAVELERS WITH DISABILITIES HAPPENING NEXT WEEK, WEDNESDAY, SEPTEMBER 18TH, AND, UH, THURSDAY, SEPTEMBER 19TH FROM 11:30 AM TO 1:00 PM ALL ONLINE.

THE FIRST DAY WILL BE A PRESENTATION FROM UNITED SPINAL ASSOCIATION ON THEIR AIR TRAVELERS WITH DISABILITIES GUIDE.

AND THE SECOND DAY WILL BE A PANEL DISCUSSION AND Q AND A, UM, WITH, UH, PEOPLE IN THE AIR TRAVEL INDUSTRY, INCLUDING, UH, THE DEPARTMENT OF TRANSPORTATION, UH, TRANSPORTATION SECURITY ADMINISTRATION, ALSO KNOWN AS TSA, UM, A BM, WHICH IS THE AIR SERVE, UH, COMPANY FOR LONG BEACH, UM, AIRPORT IN ADDITION TO LONG BEACH AIRPORT STAFF.

UM, AND ALSO AGAIN, UNITED SPINAL ASSOCIATION.

UH, THIS IS A FREE EVENT, UM, AND ONLINE FOR PEOPLE WITH DISABILITIES, UM, AND PEOPLE FROM THE OLDER COMMUNITY JUST TO PROMOTE, UM, ACCESS TO ANY SORT OF RESOURCES THAT ANY OF THESE ENTITIES THAT, UH, THAT, UH, SERVE PEOPLE.

UM, AND AIR TRAVEL FOR PEOPLE WITH DISABILITIES TO TRAVEL, UM, WITH, UH, EASE, UM, AND JUST HAVE MORE RESOURCES UNDER THEIR BELT AND KNOWLEDGE ABOUT WHAT THEY SHOULD DO TO PREP THEMSELVES FOR AIR TRAVEL.

UM, AND ALSO MOVING ON, THERE IS NO REPORT FOR THE ACCESS MAPPING AD HOC COMMITTEE IN ADDITION TO THE 2024 HOMELESS SHELTER TOURS AD HOC COMMITTEE.

AND I THINK THIS CONCLUDES THE, ALL OF THE REPORTS FOR THE AD HOC COMMITTEES LISTED UNDER ITEM THREE.

THANK YOU, JENNIFER.

I APPRECIATE THAT.

AND ANY PUBLIC COMMENTS RELATING TO THIS ITEM.

UM, IF THERE'S ANY, ARE ANY MEMBERS IN THE PUBLIC THAT WOULD LIKE TO SPEAK ON THIS ITEM IN PERSON? UH, PLEASE LINE UP AT THE PODIUM AND IN THE ZOOM PLEASE USE THE RAISE HAND FEATURE OR DOW STAR NINE IF CALLING IN.

THANK YOU.

UM, UH, YES, MS. FRANCIS, PLEASE COME TO THE PODIUM.

THANK YOU.

UM, CAN WE, UM, CONTINUE WITH THE GRANTING HER THE FIVE MINUTE PERIOD FOR YES.

THANK YOU.

FRANCE, FRANCIS, EMILY, DAWSON, HARRIS, WOW, ALL THOSE AWESOME COMMITTEES IS EXCITING.

OKAY.

OKAY.

FRANCIS, EMILY DAWSON, HARRIS.

UM, IT'S JUST AWESOME.

ALL THE COMMITTEES THAT YOU HAVE.

UM, THE ONE OF FAR AS TRAVELING IS GONNA REALLY BE A BENEFIT.

UM, AND THE ONE THAT HAS TO DO WITH, UM, THE SHELTERS IS PHENOMENAL.

'CAUSE WHEN I'M OUT AND ABOUT, I SEE QUITE A NUMBER OF PEOPLE THAT ARE DISABLED, THAT ARE HOMELESS AND THEY SAY THEY'D RATHER STAY OUT ON THE STREET BECAUSE OF GOING TO SHELTERS OR NEEDS AREN'T MET.

AND A LOT OF THEM HAVE, UM, POST-TRAUMATIC SYNDROME AND THEY SAID THEY CAN'T BE IN THE SHELTER UNLESS THEY KNOW FOR CERTAIN THEY'LL BE IN A SPACE AWAY.

BECAUSE TOO MANY THINGS HAPPEN INSIDE.

[00:40:01]

AND IT'S JUST, THEY'RE SO MISUNDERSTOOD AND SO MISLABELED AND PEOPLE NEED TO REALIZE THAT THEY'RE HUMAN BEINGS AND YOU DON'T KNOW THEIR STORY BECAUSE THEIR STORY COULD BE YOUR STORY OR YOUR FAMILY MEMBER'S STORY.

SO WE REALLY HAVE TO STEP UP TO THE PLATE ON THAT.

UM, AS FAR AS TRAVELING, UM, THAT'S QUITE A CHALLENGE BECAUSE THERE'S SO MANY DISABILITIES AND SO MANY DIFFERENT REASONABLE ACCOMMODATIONS THAT NEED TO BE MET.

AND SOME OF THEM ARE HIDDEN AND PEOPLE DON'T SEE THEM AND THEY'LL THINK, OH, YOU'RE JUST WANTING SOMETHING.

YOU KNOW, JUST BECAUSE YOU THINK YOU'RE A PRMA DONNA OR SOMETHING HAS NOTHING TO DO ABOUT THAT.

AND WHEN YOU DISCLOSE WHAT THE NATURE OF THE DISABILITY AND THE NEEDS ARE, IT COULD POTENTIALLY PUT A PERSON AT RISK BECAUSE THEY COULD HAVE A DISABILITY THAT IF IT'S MADE KNOWN, YOU KNOW, IT COULD, THEY COULD ACTUALLY BE HARMED.

UM, AND THEN I WAS, AS FAR AS THE TRAVELING, UM, I THINK THAT'S A REALLY GOOD THING TO LOOK INTO BECAUSE I KNOW I FLEW TO ORLANDO, FLORIDA A NUMBER OF YEARS AGO 'CAUSE I WAS PICKED IN THE TOP 2000 PORTS OUTTA LIKE 70,000 PORTS IN THE WORLD.

AND I HAD TO HAVE SPECIAL ACCOMMODATIONS.

AND I HAVEN'T BEEN ON, I WENT, WAS ON A PLANE WHEN MY MOTHER PASSED AWAY SEVERAL YEAR, A COUPLE YEARS AGO.

AND THE ARM ON THE PLANE ON THE END DON'T COME UP.

THEY HAVE TO PICK YOU UP AND PUT YOU OVER THE SEAT.

RIGHT? AND SO THEN AS A RESULT OF THAT, IT'S VERY PROBLEMATIC.

'CAUSE LIKE WHEN I WENT TO FLORIDA AND I CAME BACK, THEY HAD TO HAVE THE MAN LINED UP TO PICK ME UP UNDER MY ARM, UNDER MY LEGS AND PUT ME OVER.

WELL, IT WORKED OUT ON THE WAY AND THE WAY COMING BACK, THEY DIDN'T HAVE THE MANPOWER.

SO, UM, SO I FLEW FROM ORLANDO TO CHICAGO AND THEN THE STEWARDESS SAYS, OH, WELL THE MANPOWER'S NOT HERE, I'LL MOVE YOU.

I SAID, THAT'S NOT A GOOD IDEA.

WELL, YOU'RE PETITE.

I SAYS, YES, BUT I'M DEAD WEIGHT.

I CAN'T BEAR NO WEIGHT ON MY LEGS.

WELL, SHE SAID, WELL, I SAID, TRY TO GET THE MANPOWER POWER.

IT WAS ORDERED BEFOREHAND.

THEN SHE CAME IN AND SHE SAYS, IF YOU DON'T LET ME MOVE YOU, YOU'RE FLYING TO NEW YORK.

I SAID, WHY AM I FLYING TO NEW YORK? WELL, WE DON'T HAVE THE PERSONS TO MOVE YOU.

I SAYS, WELL, I GUESS I'LL BE FLYING TO NEW YORK.

AND THEN SHE GRABBED ME AND PICKED ME UP AND THEN DROPPED ME ON THE, DROPPED ME IN THE SEAT.

I SAID, YOU NEED TO JUST FLY ME TO NEW YORK.

AND SHE GRABBED ME AND PICKED ME UP AND DROPPED ME ON THE FLOOR.

SO I ENDED UP ON THE FLOOR AND HAD TO CALL AN AMBULANCE.

AND THEN I ENDED UP WITH THREE BROKEN RIBS, INTERNAL ORGAN DAMAGE.

AND THEN I ENDED UP WITH MAJOR PRIME, THE NECK COLLAR, MAJOR PROBLEMS IN MY SPINE WHEN I GOT BACK.

A LOT OF YOU DON'T KNOW THAT THIS HAPPENED.

I HAD TO HAVE MAJOR SPINAL SURGERY.

'CAUSE I WAS LIKE A T 78 MAJOR SPINAL SURGERY, A T 1 23 4.

AS A RESULT OF THAT, THE PROBLEMS IN MY NECK IS C 4 56 AND SEVEN ARE COMPRESSED.

I'M NOT SUPPOSED TO TURN MY HEAD TO THE LEFT BECAUSE THE MUSCLE ON THE LEFT SIDE OF MY NECK IS, WAS SEVERED.

THEY FORGOT TO RECONNECT IT.

SO ANYWAY, UM, IT'S A REAL PROBLEM IF THEY DON'T HAVE, UM, THE PROPER HELP.

AND THEN THEY'LL SAY YOU BRING SOMEONE WITH YOU.

SO THE THING IS TO BRING SOMEONE, WHICH WOULD BE FANTASTIC.

OKAY.

AS REASONABLE ACCOMMODATION.

AND THEN I, I ASK, WELL IF I BRING SOMEONE WITH ME, WILL I GET LIKE AT LEAST 50% OFF THE AIRFARE? 'CAUSE I'M PAYING FOR THE AIRFARE 'CAUSE YOU'RE NOT PROVIDING THE ACCOMMODATION THAT I NEED.

AND THEN, SO NO, YOU HAVE TO PAY FULL PRICE.

SO, UM, THE AIRLINE THING, I HOPE YOU REALLY DO LOOK INTO.

AND THEN THE HOMELESS I DISCUSSED, AND I THINK I PRETTY WELL, OH, AND ABOUT THE, THE YOUTH, WE GOTTA REALLY KEEP THEM ON BOARD.

BUT I'D LIKE YOU TO GO LOWER DOWN AND GO TO ELEMENTARY SCHOOL AND THEN GO, GO INTO UM, UM, MIDDLE SCHOOL.

BECAUSE ONCE YOU GO THERE AND THEY HAVE A VOICE AND THEY GET THE THINGS THEY NEED, THEN THEY'LL SAY, OH, I, I CAN DO THIS.

I CAN DO THIS.

'CAUSE SEE, WHEN I BECAME DISABLED, BECAUSE IT JUST, SUDDENLY ALL THESE THINGS HAPPENED TO MY HEALTH, I WAS TOLD, YOU'LL NEVER BE ABLE TO DO THIS.

YOU CAN'T DO THIS, YOU CAN'T DO THAT.

BUT I NEVER GAVE UP.

I REFUSED TO GIVE UP.

BUT ONCE YOU TELL SOMEBODY THEY CAN'T DO IT, AND THEY'RE VERY YOUNG, YOU KNOW, THEY'LL JUST FIGURE THEY CAN'T DO IT.

AND I THINK IF YOU DO THAT THEN AND, AND HAVE THEM INTEGRATE WITH PERSONS THAT ARE ABLE BODIED WHEN YOU DO THIS WHOLE THING, TRY TO GET THEM TO INTEGRATE WITH PEOPLE, CHILDREN THAT ARE ABLE BODIED OR OR YOUNG ADULTS ABLE BODIED AND MIX THEM UP.

AND I THINK YOU'LL HAVE A BETTER, UM, TURNOUT.

THANK YOU, FRANCIS.

THANK YOU.

YOU ARE WELCOME.

UM, CHAIR, I NOTICED THAT THERE'S A MISTAKE ON THE, UM, SCRIPT AND MY APOLOGIES, UM, UH, THERE'S NO MORE FURTHER, UM, PUBLIC COMMENT.

BUT IF HE CAN JUST CALL

[00:45:01]

THANK YOU.

AND COMMERS S ANY YES.

COMMISSIONER SWANSON.

COMMISSIONER DEAN FIRST AND THEN COMMISSIONER SWANSON, PLEASE.

UM, I, UM, GREAT COMMENTS, MS. UM, BUT, UH, REGARDING THE AIR TRAVELERS WITH DISABILITIES PANEL DISCUSSION, UM, I'M JUST WONDERING IF BOTH DAYS ARE GOING TO BE TAPED SO THAT, UM, PEOPLE WHO MAYBE ARE WORKING DURING THOSE TIMES CAN, UH, CATCH UP AT A LATER TIME.

I WILL RECORD THEM, YES.

THANK YOU MR. SWANSON.

UH, THANK YOU, UM, ON THE SAME, UM, EVENT, WHICH IS GREAT.

IT'S A BIG DEAL.

UM, IS THAT ALSO GOING TO, UM, HAVE SPANISH LANGUAGE ACCESS? UM, IT HAS NOT BEEN REQUESTED YET, BUT, UM, I, I, UH, HAVE A FEELING THAT AFTER THIS, AFTER TODAY, BECAUSE I DID SEND IT TO A LOT OF COMMUNITY BASED ORGANIZATIONS, THAT THERE MAY BE A NEED FOR SPANISH TRANSLATION.

OKAY, COOL.

THANKS.

THERE WILL BE CART SERVICES PROVIDED.

UM, AND YES, I WILL RECORD IT.

ANY OTHER COMMENTS? COMMISSIONER? THANK YOU.

YES, COMMISSIONER DEAN, DID YOU SEND IT TO, UM, MARGARET MADDEN TO HER DISTRIBUTION LIST? UM, I DID NOT, BUT I WILL DO THAT AS WELL.

GREAT.

THANK YOU.

GREAT.

GREAT.

THANK YOU JENNIFER.

SO CAN WE GET A MOTION ON THIS ITEM? UH, WE DON'T NEED A MOTION.

WE'RE JUST GONNA GO STRAIGHT TO THE VOTE.

'CAUSE WE ALREADY, UM, DID THE MOTION.

SO I'M GONNA CALL FOR THE VOTE.

I APOLOGIZE, CHAIR.

THE SCRIPT IS, YOU KNOW, GOT ITS TYPICAL JENNIFER.

MISTAKES.

I'M SORRY, .

ALL RIGHT, I'M GONNA CALL FOR THE VOTE.

COMMISSIONER ROMO AYE.

CHAIR ADAMS AYE.

SECRETARY GARBE AYE.

COMMISSIONER SWANSON.

AYE.

COMMISSIONER GONZALEZ? AYE.

COMMISSIONER DEAN.

AYE.

MOVING ON TO ITEM.

OH, MOTION PASSES.

I'M SORRY.

MOVING ON TO ITEM NUMBER FOUR, RECOMMENDATION

[4. 24-54814 Recommendation to receive and file a report from the Executive Committee.       Suggested Action: Approve recommendation. ]

UM, I HAD NOT HAD THE OPPORTUNITY TO DRAFT THAT, UM, REPORT YET SINCE WE JUST MET YESTERDAY.

BUT THE EXECUTIVE COMMITTEE HAS CHOSEN, UM, THE THREE, UH, 2020 4K COD DISABILITY, UM, ADVOCATES OF THE YEAR AWARDEES.

THEY ARE JOHN KINDRED, ROBERT, CHELSEA AND SHEILA GIBBONS AND ALAN OMI.

UM, THE, UH, AWARDS, UM, PROGRAM WILL BE HELD DURING OUR OCTOBER REGULAR MEETING, WHICH IS OCTOBER 10TH AT 1:00 PM HERE IN THE BOB FOSTER CIVIC CHAMBERS.

UH, AND IT WILL BE, UM, AT THE TOP OF THE AGENDA.

THAT CONCLUDES THE EXECUTIVE COMMITTEE REPORT.

THANK YOU.

THANK YOU.

CAN I GET A MOTION ON THIS ITEM? I MOVE, CAN I GET A SECOND? SECOND.

ALRIGHT.

IT WAS MOVED BY, UM, COMM COMMISSIONER SWANSON AND SECONDED BY, UH, COMMISSIONER GONZALEZ.

UM, YOU CAN MOVE TO PUBLIC COMMENT, SIR.

I, I JUMPED THE GUN .

NO PROBLEM.

ANY PUBLIC COMMENTS RELATING TO THIS ITEM? IF THERE IS ANY PUBLIC COMMENTS THAT WOULD LIKE TO SPEAK ON THIS ITEM IN PERSON, PLEASE LINE UP AT THE PODIUM AND IN THE ZOOM PLEASE USE THE RAISE, RAISE HAND FEATURE OR DOW STAR NINE IF CALLING IN.

OKAY.

COMMISSIONERS ANYTHING ON ANY DISCUSSION ON THIS ITEM? OKAY, SECRETARY, UH, YOU HAVE THE FLOOR? OH, NO.

UH UH, AFTER DISCUSSION WE'LL CALL FOR THE VOTE.

UM, SO I'M GONNA CALL FOR THE VOTE RIGHT NOW.

COMMISSIONER ROMO AYE.

CHAIR ADAMS AYE.

SECRETARY GARBE AYE.

COMMISSIONER SWANSON.

AYE.

COMMISSIONER GONZALEZ.

AYE.

AND COMMISSIONER DEAN.

AYE.

MOTION PASSES.

MOVING ON TO GENERAL PUBLIC COMMENT.

[PUBLIC COMMENT Opportunity to address the Citizens' Advisory Commission on Disabilities on non-agenda items. Each speaker is limited to three minutes to make their comments unless extended by the Chair.]

PLEASE.

ANY PUBLIC COMMENTS, UM, RELATED TO THIS ITEM? NO, IT'S A PUBLIC COMMENT.

OH, I'M SORRY.

THIS IS AN OPPORTUNITY TO ADDRESS THE CITIZEN PRIVACY COMMISSION ON DISABILITIES ON NON AGENDA ITEMS. EACH SPEAKER IS LIMITED TO THREE MINUTES UNLESS YOU'VE REQUESTED A REASONABLE ACCOMMODATION.